This Guide presents various ways to reduce the impact of stigma, discrimination and prejudice on individuals:
- At the individual level of persons affected by NTDs, by using psychosocial support to develop coping mechanisms and promote resilience and self-advocacy, and through role models or champions.
- At the group level of persons affected by NTDs, by creating a supportive environment through the development of support groups.
- At the family level, by reducing the impact of stigma on families through family psychosocial support and family support groups.
‘Nobody asked me how I was feeling, everyone just told me what to do.’”
A statement from a leprosy-affected person
After working through this Guide, you should understand:
- That there are various ways to reduce the impact of discrimination and prejudice on individuals. These can target different ‘levels’: individual, group and family.
- How psychosocial support can help a person to cope with mental health problems or any other hardship or challenges they might experience at a given time.
- The comprehensive guides that are available for giving psychosocial support.
- How to determine what type of support group (self-help, self-care and online) is most appropriate for a given situation.
- The different family-level interventions available.
- The role family plays in reducing or increasing the stigma and the distress individuals may experience.
- What referral is and when it is necessary to refer someone.
The following people have been the main contributors to this Guide: Anna van ’t Noordende, Jennifer Mangeard-Lourme, Zoica Bakirtzief da Silva Pereira, Gareth Shrubsole, Valsa Augustine, Jayashree P Kunju, Wilfred Gwaikolo and Geoff Warne.
Published by the International Federation of Anti-Leprosy Associations (ILEP) and the Neglected Tropical Disease NGO Network, London, 2019
Photo credits: CBM / Hayduk, Layla Aerts for Damien Foundation, NLR, The Leprosy Mission Trust India, NLR / Tom Bradley, NLR / Sasja van Vechgel, DAHW, NLR India.