Back to search
Publication

Towards a toolkit for cross-neglected tropical disease morbidity and disability assessment.

Abstract

BACKGROUND: Neglected tropical diseases (NTDs) are a group of often chronic and disabling infectious conditions, closely related to poverty and inequities. While it is estimated that millions of people are affected, accurate and internationally comparable data about NTD-related morbidity and disability are lacking. Therefore we aimed to develop and pilot a toolkit to assess and monitor morbidity and disability across NTDs.

METHODS: A cross-sectional, non-random survey design with a mixed methods approach was used. We conducted a literature review on existing tools to assess and monitor disability, followed by a Delphi study with NTD experts to compile a prototype toolkit. A first-phase validation study was conducted in Northeast Brazil among people with Chagas disease, leishmaniasis, leprosy and schistosomiasis.

RESULTS: Instruments included were the clinical profile, WHODAS, P-scale, SRQ, WHOQOL-BREF and WHOQOL-DIS. Most questions in the various instruments were readily understood with the exception of the WHOQOL-BREF, where additional explanations and examples were often needed. The respondents were very appreciative of the instruments and found it valuable to have the opportunity to talk about these aspects of their condition.

CONCLUSIONS: Our findings support the acceptability and relevance of five of the six instruments tested and the concept of a cross-NTD toolkit.

More information

Type
Journal Article
Author
van ’t Noordende AT
Kuiper H
Ramos AN
Mieras LF
Barbosa JC
Pessoa SM F
Souza EA
Fernandes TA
Hinders DC
Praciano MM A
van Brakel WH
Year of Publication
2016
Journal
International health
Volume
8 Suppl 1
Number of Pages
i71-81
Language
eng
ISSN Number
1876-3405
DOI
10.1093/inthealth/ihw006
Alternate Journal
Int Health
Publication Language
eng