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Self care group in leprosy control program in Indonesia

Abstract

Self care group (SCG) for people affected by leprosy in Indonesia have been started since 2000. One hundred and twenty four (124) SCGs were established within 8 years (2000-2007). It is increasing in quantity but the quality of the SCG program is never assesses properly. An inventory study of SCG had been done in 2007. Twenty SCG were chosen randomly to be evaluated by the National Leprosy and Yaws Consultants (NLYC) team. The author is one of the team members. A set of questionnaire were used as guidance tool to evaluate some aspects of SCG activities during the SCG meetings. The major study questions of the thesis were: 1) how is the situation of SCG program in Indonesia?, 2) how is the SCG establishment process?, 3) what is the role of related stakeholders on SCG program in Indonesia?, 4) What kinds of activities are done in SCG program?, 5) what are the impacts of SCG to its members?, 6) what are the challenges of SCG in Indonesia?, 7) how to address the challenges to improve SCG program? Methodologies used are literature study about Self Care Group for people affected by leprosy, Community Based Rehabilitation, report of SCG activities from Indonesia, Nepal, Ethiopia, India and data analysis of secondary data of inventory study of SCG in Indonesia in 2007.

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Thesis