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Publication

Perceived social restriction in leprosy-affected inhabitants of a former leprosy colony in northeast Brazil.

Abstract

INTRODUCTION: In Brazil, isolation of individuals affected with leprosy was compulsory by law from 1920 to 1962, but in reality, confinement of patients to leprosaria continued until the 1980s. The social participation restriction of people still living in these institutions has never been investigated systematically.

STUDY AIM: To examine the extent and type of participation restriction perceived by former leprosy patients living in the Centro de Convivência Antônio Diogo (CCAD), a previous leprosy colony in rural Northeast Brazil, by using the Participation Scale.

RESULTS: Forty (51-9%) out of 77 individuals reported significant participation restrictions, mainly related to work and mobility. Perceived participation restriction was significantly higher in people living in nursing units of the CCAD (P = 0-001), if diagnosis of leprosy was made before 1982 (P = 0.002), in the presence of walking limitation (P < 0.001) and visible physical alterations (P = 0-002), such as foot deformities (P = 0.002), saddle nose (P = 0.03) and blindness (P = 0.04), and in those individuals who did not receive visitors (P = 0.004).

CONCLUSION: Social rehabilitation, especially in the areas of work and mobility, is strongly needed together with prevention of debilitating physical sequelae and reduction of stigmatisation.

More information

Type
Journal Article
Author
Lesshafft H
Heukelbach J
Barbosa JC
Rieckmann N
Liesenfeld O
Feldmeier H
Year of Publication
2010
Journal
Leprosy review
Volume
81
Issue
1
Number of Pages
69-78
Date Published
2010 Mar
Language
eng
ISSN Number
0305-7518
Call Number
Infolep Library - available
Alternate Journal
Lepr Rev
Publication Language
eng