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The meaning of leprosy and everyday experiences: an exploration in cirebon, indonesia.

Abstract

It is imperative to consider the meaning of leprosy and everyday experiences of people affected by leprosy and key persons in the community if one aims to make leprosy services more effective, which appears necessary in Indonesia given the large numbers of new cases detected annually. However, little is written in the international literature about the experiences of people currently being treated for leprosy, those cured, or other key informants. This paper analyses the narratives of the people by drawing upon in-depth interviews with 53 participants and 20 focus groups discussions. The participants were purposively selected. We provide insights into the experiences of people and the meaning they give to leprosy and highlight aspect of aetiology, spirituality, religion, darkening of the skin, and sorcery. We also examine experiences of seeking care and focused on the impact of the disease in particular on the elderly and children. In conclusion, the continued need for implementation of leprosy services in Indonesia is very evident. The diversities in people's experiences with leprosy indicate a demand for responsive leprosy services to serve the diverse needs, including services for those formally declared to be "cured."

More information

Type
Journal Article
Author
Peters RM H
Lusli M
Miranda-Galarza B
van Brakel WH
Zweekhorst MB
Damayanti R
Seda FS S E
Bunders JF G
Year of Publication
2013
Journal
Journal of tropical medicine
Volume
2013
Number of Pages
507034
Date Published
2013
Language
eng
ISSN Number
1687-9686
Call Number
PETERS 2013
DOI
10.1155/2013/507034
Alternate Journal
J Trop Med
Publication Language
eng