Cultural validation of a new instrument to measure leprosy-related stigma: the SARI Stigma Scale.

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TítuloCultural validation of a new instrument to measure leprosy-related stigma: the SARI Stigma Scale.
Tipo de PublicaciónJournal Article
AutoresPeters RMH, van Brakel WH, Lusli M, Damayanti R, Bunders JFG, Dadun
Abbrev. JournalLepr Rev
RevistaLeprosy review
Año de Publicacion2017
Volume88
Issue1
Pagination23-42
Idioma de Publicacióneng
Palabras clave Leprosy, SARI Stigma Scale, Stigma
Resumen

Background: There is a need for comprehensive, valid and reliable instruments to assess leprosy-related stigma. This paper presents the process of the cross-cultural validation of an instrument in Cirebon District, Indonesia initiated by the Stigma Assessment and Reduction of Impact (SARI) project.

Methods: The Berger Scale was initially developed to assess HIV/AIDS-related stigma. This study explores the conceptual, item, semantic, operational and measurement equivalence of this scale for leprosy. The process included a qualitative study, translation and back-translation, training of interviewers, a pilot and the main data collection. We aimed for a sample of 154 people affected by leprosy with 60 repeat interviews. They were selected through convenience sampling.

Results: The original scale showed acceptable conceptual equivalence, but insufficient item, semantic and operational equivalences. For instance, there were irrelevant HIV-related items and the respondents found it difficult to indicate their level of agreement with the given statements. Major adjustments were necessary, leading to a new version of the scale. The measurement properties of the new version showed good internal consistency (Cronbach’s alpha 0·88); no floor or ceiling effects; and a good reliability (intra-class correlation coefficient 0·75).

PubMed URL

http://www.ncbi.nlm.nih.gov/pubmed/30188086?dopt=Abstract

Link to full texthttps://www.lepra.org.uk/platforms/lepra/files/lr/Mar17/16-0039.pdf