Study of socio-anthropological approach on the experience of women with leprosy reactions, an acute chronic evolution that affects half of those who have leprosy. Seven women with reactions were interviewed, accompanied by a reference service in Cuiabá-MT, the region with the highest number of cases in Brazil. The analysis was carried out in the thematic modality and the results cover the context in which they live, the appearance and interpretation of the reactions, the repercussions and dilemmas of a "treatment that gets sick". Reactions are embedded in the trajectory of leprosy and are markers of illness by intensifying pain or causing bruising and erythema throughout the body. In explaining their origin, reactions are inserted into broad contexts and situations of stress or sadness. Treatment becomes a problem as it affects how they look, a process that is added and incorporated into the stigmatizing situation caused by leprosy. Having reactions can be considered "worse" than having leprosy, since it is not always possible to predict or control them and therefore, it is assumed that the notion of cure requires other senses, based on daily reconstruction. It reiterates the importance of approaching the problem in a perspective that favors a comprehensive care for the patients.
BT - Physis: Revista de Saúde Coletiva C1 -
C5 -
DO - 10.1590/s0103-73312018280422 IS - 4352esp. 21198401848324 J2 - Physis LA - por N2 -
Study of socio-anthropological approach on the experience of women with leprosy reactions, an acute chronic evolution that affects half of those who have leprosy. Seven women with reactions were interviewed, accompanied by a reference service in Cuiabá-MT, the region with the highest number of cases in Brazil. The analysis was carried out in the thematic modality and the results cover the context in which they live, the appearance and interpretation of the reactions, the repercussions and dilemmas of a "treatment that gets sick". Reactions are embedded in the trajectory of leprosy and are markers of illness by intensifying pain or causing bruising and erythema throughout the body. In explaining their origin, reactions are inserted into broad contexts and situations of stress or sadness. Treatment becomes a problem as it affects how they look, a process that is added and incorporated into the stigmatizing situation caused by leprosy. Having reactions can be considered "worse" than having leprosy, since it is not always possible to predict or control them and therefore, it is assumed that the notion of cure requires other senses, based on daily reconstruction. It reiterates the importance of approaching the problem in a perspective that favors a comprehensive care for the patients.
PY - 2018 T2 - Physis: Revista de Saúde Coletiva TI - "The reaction is the most difficult, it is worse than leprosy": contradictions and ambiguities in the experience of women with leprosy reactions TT - “A reação é o mais difícil, é pior que hanseníase”: contradições e ambiguidades na experiência de mulheres com reações hansênicas UR - http://www.scielo.br/scielo.php?pid=S0103-73312018000400620&script=sci_arttext&tlng=pt VL - 2891915482228461613183722396 SN - 0103-7331 ER -