This research aims to investigate the experiences of people who lived and worked in a former Leprosy Home in the countryside of São Paulo state, and who developed, through sociability networks and solidarity, several tactics for survival and resistance. The Departamento de Profilaxia da Lepra (Leprosy Prophylaxis Department), created in 1935 and extinct in 1967, was responsible not only for the isolation policy deployed in five state leper colonies (including the one located in Bauru, called Aimorés) but also for all disciplinary laws and regulations implemented in the institutions. The patients were outcasted from society and started living in institutions under quite strict rules and regulations, to protect the population from an endemic situation of Leprosy, especially regarding their time and (free) use of their bodies. The “asilo – colônia Aimorés” (former Aimorés Home Colony) was recognized as a full function institution, ruled by different public policies for disease control (from mandatory isolation to treatment hospitalization, available since the end of the 1940s). Although a decree was signed in 1962 putting an end to this policy for all Leprosy patients, the state of São Paulo insisted on it until 1967, when the Health State Secretary went under a restructure. Considering this scenery, how did men and women deal with the confinement and what alternatives did they find to bear this probation? How these changes affected the way these people lived? Therefore, we are trying to identify how social networks formed in such strict environments allowed them to develop survival techniques and resistance to the isolation regime they were forced to, finding opportunities to subvert the disciplinary codes inflicted. Such tactics are presented after the analysis of interviews with former patients, detailing important aspects of their social relations and their routines, examining their memories about work, leisure, and entertainment. The first collective uprising in 1945 marks the beginning of this study and proceeds until the impact of these changes for the “Caixa Beneficente” activities. The institution would assist patients and their adaptation in the Home Colonies, but in 1969 it started to offer support for life outside these walls, though not always successful. To understand this context (from the creation of the institution and its operation), we’ll detail the public policies regarding the fight against the disease in the state, in the period mentioned, through several sources
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This research aims to investigate the experiences of people who lived and worked in a former Leprosy Home in the countryside of São Paulo state, and who developed, through sociability networks and solidarity, several tactics for survival and resistance. The Departamento de Profilaxia da Lepra (Leprosy Prophylaxis Department), created in 1935 and extinct in 1967, was responsible not only for the isolation policy deployed in five state leper colonies (including the one located in Bauru, called Aimorés) but also for all disciplinary laws and regulations implemented in the institutions. The patients were outcasted from society and started living in institutions under quite strict rules and regulations, to protect the population from an endemic situation of Leprosy, especially regarding their time and (free) use of their bodies. The “asilo – colônia Aimorés” (former Aimorés Home Colony) was recognized as a full function institution, ruled by different public policies for disease control (from mandatory isolation to treatment hospitalization, available since the end of the 1940s). Although a decree was signed in 1962 putting an end to this policy for all Leprosy patients, the state of São Paulo insisted on it until 1967, when the Health State Secretary went under a restructure. Considering this scenery, how did men and women deal with the confinement and what alternatives did they find to bear this probation? How these changes affected the way these people lived? Therefore, we are trying to identify how social networks formed in such strict environments allowed them to develop survival techniques and resistance to the isolation regime they were forced to, finding opportunities to subvert the disciplinary codes inflicted. Such tactics are presented after the analysis of interviews with former patients, detailing important aspects of their social relations and their routines, examining their memories about work, leisure, and entertainment. The first collective uprising in 1945 marks the beginning of this study and proceeds until the impact of these changes for the “Caixa Beneficente” activities. The institution would assist patients and their adaptation in the Home Colonies, but in 1969 it started to offer support for life outside these walls, though not always successful. To understand this context (from the creation of the institution and its operation), we’ll detail the public policies regarding the fight against the disease in the state, in the period mentioned, through several sources
PY - 2017 TI - [Reinventing a place of exclusion: practices, representations, and sociabilities of Hansen's disease in Aimorés (Bauru, São Paulo, 1945 – 1969)] TT - Reinventando um lugar de exclusão: práticas, representações e sociabilidades de portadores do Mal de Hansen no Aimorés (Bauru, São Paulo, 1945 – 1969) UR - https://repositorio.unesp.br/handle/11449/151819 ER -