TY - JOUR KW - Africa KW - Asia KW - Attitude of Health Personnel KW - Coercion KW - Emotions KW - Europe KW - Health Knowledge, Attitudes, Practice KW - Humans KW - Judgment KW - Language KW - Latin America KW - Lost to Follow-Up KW - Patient-Centered Care KW - Patients KW - Power (Psychology) KW - Terminology as Topic KW - Tuberculosis AU - Zachariah R AU - Harries A D AU - Srinath S AU - Ram S AU - Viney K AU - Singogo E AU - Lal P AU - Mendoza-Ticona A AU - Sreenivas A AU - Aung N W AU - Sharath B N AU - Kanyerere H AU - Soelen N AU - Kirui N AU - Ali E AU - Hinderaker S G AU - Bissell K AU - Enarson D A AU - Edginton M E AB -

The words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm.

BT - The international journal of tuberculosis and lung disease : the official journal of the International Union against Tuberculosis and Lung Disease C1 - http://www.ncbi.nlm.nih.gov/pubmed/22613683?dopt=Abstract CN - ZACHARIA 2012 DA - 2012 Jun DO - 10.5588/ijtld.11.0635 IS - 6 J2 - Int. J. Tuberc. Lung Dis. LA - eng N2 -

The words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm.

PY - 2012 SP - 714 EP - 7 T2 - The international journal of tuberculosis and lung disease : the official journal of the International Union against Tuberculosis and Lung Disease TI - Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? VL - 16 SN - 1815-7920 ER -