Despite Malaysia’s low leprosy prevalence, new cases continue to emerge in rural and Indigenous communities. National strategies often prioritise elimination and surveillance, while overlooking the needs and challenges of individuals affected by leprosy and those managing their care. This study employed a transdisciplinary research approach, guided by the Dialogue Model, to co-develop context-specific strategies to improve the lives of those affected through participatory engagement with both groups. Conducted across three high-burden states in Peninsular Malaysia, the research involved a desk review and stakeholder mapping, followed by 40 in-depth interviews with affected individuals and other stakeholders. These were complemented by a stakeholder workshop, a focus group discussion, and an evaluation of implemented strategies. Participants identified overlapping and divergent concerns, including stigma, financial hardship, access barriers, interagency coordination, and awareness gaps. These findings informed the co-development of locally grounded strategies, some of which have since been trialled at the community level. While not primarily intended to influence national policy, the study generated actionable strategies to improve leprosy care delivery in underserved settings. This approach demonstrates how transdisciplinary methods can help align community experiences with service provision in neglected tropical disease programmes, particularly in low-endemic contexts, and contribute to more equitable global health systems.
BT - Global Public Health DO - 10.1080/17441692.2025.2598721 IS - 1 LA - ENG M3 - Article N2 -Despite Malaysia’s low leprosy prevalence, new cases continue to emerge in rural and Indigenous communities. National strategies often prioritise elimination and surveillance, while overlooking the needs and challenges of individuals affected by leprosy and those managing their care. This study employed a transdisciplinary research approach, guided by the Dialogue Model, to co-develop context-specific strategies to improve the lives of those affected through participatory engagement with both groups. Conducted across three high-burden states in Peninsular Malaysia, the research involved a desk review and stakeholder mapping, followed by 40 in-depth interviews with affected individuals and other stakeholders. These were complemented by a stakeholder workshop, a focus group discussion, and an evaluation of implemented strategies. Participants identified overlapping and divergent concerns, including stigma, financial hardship, access barriers, interagency coordination, and awareness gaps. These findings informed the co-development of locally grounded strategies, some of which have since been trialled at the community level. While not primarily intended to influence national policy, the study generated actionable strategies to improve leprosy care delivery in underserved settings. This approach demonstrates how transdisciplinary methods can help align community experiences with service provision in neglected tropical disease programmes, particularly in low-endemic contexts, and contribute to more equitable global health systems.
PB - Informa UK Limited PY - 2025 SP - 1 EP - 17 T2 - Global Public Health TI - Co-developing strategies for leprosy management in Malaysia: A transdisciplinary research approach involving individuals affected by leprosy and other stakeholders UR - https://www.tandfonline.com/doi/pdf/10.1080/17441692.2025.2598721 VL - 20 SN - 1744-1692, 1744-1706 ER -