Introduction
Although leprosy is curable, many affected individuals continue to face disability, stigma, and poverty. In Nepal, sustaining progress after elimination remains challenging, making community-based approaches such as self-care and self-help groups crucial for long-term health and social inclusion. This study investigates how self-help groups and cooperatives contribute to sustaining community-driven leprosy management efforts.
Methods
For this study only qualitative data are utilized which involves people affected by leprosy, single women, community stakeholders, and facilitators. Conventional content analysis was employed to examine the data, focusing on participants’ experiences and perceptions.
Results
Self-help groups were instrumental in reducing social stigma and promoting social inclusion for marginalized individuals. These groups empowered members by building skills in hygiene, self-care, awareness of gender-based violence, and financial management, enabling them to assert their rights, manage finances, and contribute to household decisions, thereby fostering long-term socio-economic resilience. Transitioning to a cooperative model provided legal recognition and financial security, with leadership and trust being crucial for continued growth.
Conclusions
The transition to cooperatives offers a promising path for sustainable development, ensuring legal recognition and financial stability while reducing stigma and improving societal perceptions towards leprosy, disability, and marginalized communities.
BT - PLOS Neglected Tropical Diseases DO - 10.1371/journal.pntd.0013799 IS - 12 LA - ENG M3 - Article N2 -Introduction
Although leprosy is curable, many affected individuals continue to face disability, stigma, and poverty. In Nepal, sustaining progress after elimination remains challenging, making community-based approaches such as self-care and self-help groups crucial for long-term health and social inclusion. This study investigates how self-help groups and cooperatives contribute to sustaining community-driven leprosy management efforts.
Methods
For this study only qualitative data are utilized which involves people affected by leprosy, single women, community stakeholders, and facilitators. Conventional content analysis was employed to examine the data, focusing on participants’ experiences and perceptions.
Results
Self-help groups were instrumental in reducing social stigma and promoting social inclusion for marginalized individuals. These groups empowered members by building skills in hygiene, self-care, awareness of gender-based violence, and financial management, enabling them to assert their rights, manage finances, and contribute to household decisions, thereby fostering long-term socio-economic resilience. Transitioning to a cooperative model provided legal recognition and financial security, with leadership and trust being crucial for continued growth.
Conclusions
The transition to cooperatives offers a promising path for sustainable development, ensuring legal recognition and financial stability while reducing stigma and improving societal perceptions towards leprosy, disability, and marginalized communities.
PB - Public Library of Science (PLoS) PY - 2025 SE - 1 SP - 1 EP - 22 T2 - PLOS Neglected Tropical Diseases TI - Fostering empowerment: Transition from self-help groups to cooperatives in leprosy-affected communities in Nepal UR - https://journals.plos.org/plosntds/article/file?id=10.1371/journal.pntd.0013799&type=printable VL - 19 SN - 1935-2735 ER -