TY - JOUR
KW - Hansen's disease
KW - Stigma
KW - Medical anthropology
KW - Brazil
KW - Social suffering
KW - Phenomenology
KW - Colonial Hauntology
AU -
AU - Beldi de Alcantara MDL
AU - Corbett CE
AU -
AU - Xavier MB
AU -
AB - Hansen’s disease (HD), historically labeled “leprosy,” persists as a public-health and social-justice concern despite the availability of curative multidrug
therapy (MDT). Drawing on 55 semi-structured interviews and extensive participant observation in Vila Santo Antônio do Prata, Pará (2017-2023), this
article interrogates how stigma continues to shape the biographies, spatial practices, and mental well-being of individuals who have experienced HD.
Anchored in medical anthropology, critical phenomenology, and social-suffering frameworks, the analysis reveals three interlocking domains of harm:
(1) ontological insecurity generated by enduring the label of “cursed”; (2) social death mediated through forced spatial marginalization; and (3) embodied
hauntologies that reproduce colonial and religious imaginaries. The findings underscore the necessity of integrated interventions that combine biomedical
cure with culturally grounded psychosocial support and community-level stigma reduction.
BT - Journal of Medical and Clinical Nursing Studies
DO - 10.61440/jmcns.2025.v3.87
LA - ENG
M3 - Article
N2 - Hansen’s disease (HD), historically labeled “leprosy,” persists as a public-health and social-justice concern despite the availability of curative multidrug
therapy (MDT). Drawing on 55 semi-structured interviews and extensive participant observation in Vila Santo Antônio do Prata, Pará (2017-2023), this
article interrogates how stigma continues to shape the biographies, spatial practices, and mental well-being of individuals who have experienced HD.
Anchored in medical anthropology, critical phenomenology, and social-suffering frameworks, the analysis reveals three interlocking domains of harm:
(1) ontological insecurity generated by enduring the label of “cursed”; (2) social death mediated through forced spatial marginalization; and (3) embodied
hauntologies that reproduce colonial and religious imaginaries. The findings underscore the necessity of integrated interventions that combine biomedical
cure with culturally grounded psychosocial support and community-level stigma reduction.
PB - OASK Publishers
PY - 2025
SP - 1
EP - 8
T2 - Journal of Medical and Clinical Nursing Studies
TI - Haunted by Stigma: Living with Hansen’s Disease in the Brazilian Amazon
UR - https://app.oaskpublishers.com/assets/article-pdf/haunted-by-stigma-living-with-hansens-disease-in-the-brazilian-amazon.pdf
ER -