02608nas a2200313 4500000000100000008004100001260000900042653001500051653001000066653001000076653002100086653003000107653001200137653001100149653002100160653001900181653001100200653001000211653001200221653000900233653002300242653002200265100001700287245005800304300001100362490000700373520190000380022001402280 1984 d c198410aAdolescent10aAdult10aChild10aChild, Preschool10aCommunity Health Services10aDapsone10aFemale10aHealth Education10aHealth Surveys10aHumans10aIndia10aleprosy10aMale10aPatient Compliance10aSocial Perception1 aBerreman J M00aChildhood leprosy and social response in south India. a853-650 v193 a
This paper reports a field study of childhood leprosy in the state of Karnataka, India, as encountered through a private, secular leprosy hospital and its rural outpatient program serving some 60 villages. Symptoms of leprosy among children are subtle, ambiguous and not readily distinguishable from those of relatively innocuous skin ailments with which villagers of the region commonly lump them. In addition, severe stigma attaches to the disease. As a result, diagnosis tends to be resisted, rendering effective treatment difficult. The research focused on the hospital's comprehensive program of diagnosis, treatment, education and rehabilitation, and the responses of people of it. Three categories of response to diagnosis and treatment, as defined by the hospital program, were investigated: regular acceptors, irregular acceptors and refusers. Contrary to expectation, those who accept treatment irregularly and hence ineffectively, express greater awareness of the cause, symptoms and treatment of the disease than either those who accept regular treatment or those who refuse treatment. Despite frequent verbal denials of belief in, or fear of, contagion, people's behavior regarding leprosy and its victims indicates that such beliefs are indeed harbored. The effectiveness of the program is assessed with reference to its policies and procedures as they affect the rural population. Especially effective is the policy of not confronting people with diagnoses of leprosy in problematic childhood cases, but of asserting instead that leprosy can be averted if treatment is accepted. Resistance generated by the fear and stigma of leprosy is thus mitigated by presenting its childhood symptoms as pre-leprous rather than as early leprosy. The research concludes that the program has achieved notable success in each of its aspects and is therefore worthy of emulation elsewhere.
a0277-9536