01371nas a2200229 4500000000100000008004100001653001500042653004500057653002700102653002500129653001800154653001100172100001400183700001700197700001200214700001200226245012900238856004600367300001200413490000700425520070900432 2017 d10aDisability10adisabled persons’ organisations (DPOs)10aParticipatory research10aQualitative Research10aSelf-advocacy10aZambia1 aCleaver S1 aMagalhães L1 aBond VA1 aNixon S00aExclusion through attempted inclusion: Research experiences with Disabled Persons’ Organisations (DPOs) in Western Zambia. uhttp://dcidj.org/article/download/670/381 a110-1170 v283 a

Partnership with disabled persons’ organisations (DPOs) is often presented as one mechanism to ensure the inclusion of persons with disabilities in research that concerns them. In working with two DPOs in Western Zambia, we learned that one of these groups was organised in a way that differed from our own presumptions and the descriptions of DPOs in literature: the group was fluid in membership and willing to re-formulate itself according to the priorities of visitors. From this we understand that limiting research partnerships to DPOs, as typically described, could lead to the inadvertent exclusion of people involved in many different forms of organising by persons with disabilities.