02581nas a2200313 4500000000100000008004100001260001300042653002300055653004000078653001700118653002000135653001100155653001000166653001200176653002100188653001700209100001200226700001600238700001200254700001200266700001700278245010600295856005100401300001100452490000700463050001500470520176800485022001402253 2002 d c2002 Jun10aAttitude to Health10aDelivery of Health Care, Integrated10aFocus Groups10aHealth Planning10aHumans10aIndia10aleprosy10aRural Population10aStereotyping1 aArole S1 aPremkumar R1 aArole R1 aMaury M1 aSaunderson P00aSocial stigma: a comparative qualitative study of integrated and vertical care approaches to leprosy. uhttps://leprosyreview.org/article/73/2/18-6196 a186-960 v73 aAROLE 20023 a

Integration of leprosy into the general health system is very much emphasized by health care planners. One prime reason stated for this is to reduce stigma attached to this disease. This study was conducted in the state of Maharashtra, India, to compare the level of social stigma towards leprosy in communities with a vertical and an integrated programme. The data were collected in three areas of five villages each. The first two areas were in an integrated programme to test for internal consistency and the third in a vertical programme. All the leprosy patients with visible deformities in these villages were enrolled in the study, and an in-depth stigma measurement scale was administered. In addition, focus group discussions were conducted among the family members of leprosy patients and participative rural appraisal was done in the communities. The data were analysed using qualitative methods. A total of 24 leprosy patients with visible deformities participated in the in-depth stigma measurement exercise from 15 villages. Fifteen focus group discussions were conducted with families of leprosy patients and an equal number of participatory rural appraisals with communities were done. The results show that social stigma was virtually non-existent among the communities with the integrated approach and minimally experienced by leprosy patients in this model. However, a high level of self-stigmatization among leprosy patients was observed in the vertical approach and equally a high level of social stigma was found in their communities, which led to reduced interaction between the leprosy patients and their communities. The integrated approach to community-based primary health care is effective in reducing leprosy stigma in society.

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