01068nas a2200157 4500000000100000008004100001100001400042700001600056700001400072700001300086245008400099300000900183490000700192520069700199022001400896 2014 d1 aLambert V1 aGallagher P1 aO'Toole S1 aBenson A00aStigmatising feelings and disclosure apprehension among children with epilepsy. a22-60 v263 a
Despite worldwide campaigns to enhance public awareness, understanding and acceptability of epilepsy, stigmatising feelings remain among children with epilepsy and their families. Stigma can be internally felt by the child (shame and embarrassment) or enacted by others (discrimination). Many children with epilepsy and their parents fear disclosure of the condition and exercise a variety of disclosure or concealment strategies. Maintaining these strategies can have a negative, stressful impact on the child's social and psychosocial development and quality of life. Continuing dialogue among families, friends, teachers and health professionals should be initiated and supported.
a2046-2336