01907nas a2200265 4500000000100000008004100001260004900042653002700091653002300118653001200141653001100153653001000164653001200174653000900186653001700195653001800212653001700230100001400247245007700261856005100338300001100389490000700400520122000407022001401627 2011 d c2011 JunbLEPRA Health in ActionaColchester10aAnthropology, Cultural10aBiography as Topic10aCulture10aHumans10aIndia10aleprosy10aMale10aSocial Class10aSocial stigma10aStereotyping1 aStaples J00aNuancing 'leprosy stigma' through ethnographic biography in South India. uhttps://leprosyreview.org/article/82/2/10-9123 a109-230 v823 a
Synoptic life history accounts and case studies of people with leprosy have tended to follow conventionalised narrative forms, with the onset of leprosy causing a violent rupture in otherwise positively construed life courses. Many of those I worked with in India, well-versed in relating their stories to donor agencies, were also aware of the power of such narratives to access funding. While case studies can be informative about the politics of representation, then, they often obscure as much as they reveal about the lives of those described within them, emphasising leprosy-related stigma at the expense of other forms or drivers of social exclusion. Drawing upon a series of interviews with a leprosy affected man I have known and worked with for 25 years, this paper demonstrates how more nuanced--and, from a policy perspective, more useful--accounts might be achieved through intensive biographical interviews carried out over time. In particular, analysis of such biographies, set against the wider backdrop of ethnographic research, allows for a more subtle reading of leprosy-related stigma, contextualised in relation to a range of intersecting socio-political, cultural and economic concerns.
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