@article{John04042012,
  keywords = {Activism, Bible, Carville, Disease terminology, Hansen{\textquoteright}s disease, leprosy, Public education, Stigma},
  author = {John H},
  title = {Translating Leprosy: The Expert and the Public in Stanley Stein{\textquoteright}s Anti-stigmatization Campaigns, 1931{\textendash}60},
  abstract = {<p>This article examines three campaigns through which patient activist Stanley Stein sought to combat the stigmatized connotations of the word {\textquotedblleft}leprosy.{\textquotedblright} In 1931, soon after starting the first patient newspaper at the U.S. national leprosy hospital at Carville, Stein became convinced of the necessity of finding an alternative to {\textquotedblleft}leprosy.{\textquotedblright} His ensuing campaign to promote the use of the words {\textquotedblleft}Hansen{\textquoteright}s Disease{\textquotedblright} to describe the condition from which he and fellow Carville patients suffered became his most passionate and life-long project. In the 1950s, Stein became involved in efforts to change the translation of {\textquotedblleft}leprosy{\textquotedblright} in the Bible. Finally, in 1960, he waged a campaign to de-stigmatize encyclopedia entries on leprosy. These campaigns illustrate how even elevation of the medical expert and a seeming disdain for the public can function as a protest of medical authority and reveal a presumption that a significant degree of authority actually resides with the public.</p>
},
  year = {2012},
  journal = {Journal of the History of Medicine and Allied Sciences},
  month = {04/2012},
  publisher = {Oxford University Press},
  address = {Oxford},
  doi = {10.1093/jhmas/jrs018},
  language = {eng},
}