@article{article, keywords = {Culture, What matters most, Indonesia, Stigma, Gender}, author = {Sopamena Y and Sutiawan R and Visser MJ and Dadun D and Damayanti R and Anshari D and Yang L and Peters RMH and Zweekhorst MBM}, title = {What matters most in Cirebon, Indonesia: cultural nuances to health-related stigma}, abstract = {
Individuals with stigmatised health conditions face adverse attitudes, social exclusion and discrimination, stemming from preconceived notions about the condition and its associated symptoms or links to disability. Culture plays a role in shaping stigma manifestations. By employing the {\textquoteleft}what matters most{\textquoteright} framework, this study sought to capture perspectives of men and women living with leprosy, lymphatic filariasis or depressive disorder, and of their families and healthcare providers, regarding key cultural capabilities that {\textquoteleft}matter most{\textquoteright} for men and women in Cirebon Regency, Indonesia. A total of 91 respondents participated in 45 interviews and 10 focus group discussions. Data were analysed using thematic content analysis and the analysis generated three core cultural themes defined as {\textquoteleft}what matters most{\textquoteright} in Cirebon Regency: personal responsibilities, marriage and family responsibilities, and community responsibilities. Specifically, recovery-oriented attitudes, family support and community engagement were identified as key cultural engagements that could help people with stigmatised conditions to maintain personhood and mitigate health-related stigma. In conclusion, our findings highlight it is important to consider these cultural capabilities in stigma research, particularly in the design of stigma assessment and stigma-reduction interventions.
}, year = {2025}, journal = {Global Public Health}, volume = {20}, publisher = {Informa UK Limited}, issn = {1744-1692, 1744-1706}, url = {https://www.tandfonline.com/doi/full/10.1080/17441692.2025.2497918$\#$abstract}, doi = {10.1080/17441692.2025.2497918}, language = {eng}, }