02126nas a2200157   4500000000100000008004100001653002800042653002500070653001700095653001500112100001300127700001200140245007600152050001600228520172400244       2014                            d10aMiddle income countries10aLow income countries10aDisabilities10aCaregivers1 aThrush A1 aHyder A00aThe neglected burden of caregiving in low- and middle- income countries  aTHRUSH 20143 aBackground
The number of persons with disability worldwide is estimated at more than one billion, and low- and middle-income countries (LMIC’s) have particularly high prevalance. The consequences of disability have garnered growing attention, but the burden of caregiving for persons with disease or disability remains largely unquantified especially in LMIC’s.
Objective
The goal of this paper is to report the results of a review of literature on caregiving in LMIC’s, describing the characteristics of caregivers and of persons with disease or disability for whom care is provided, and the burden of caregiving in several domains.
Methods
We reviewed electronically available literature up to March 2012. Data was extracted pertaining to the following categories: caregiver demographics, caregiving activities, psychological burden, social burden, financial burden, physical burden, and time burden.
Results
Our review demonstrates that there is considerable and neglected burden on caregivers in LMIC’s in physical, psychological, social, time, and financial realms. Existing literature is limited by the small volume of published research available on this topic, diverse methodologies, and lack of consensus on how to define and measure caregiver burden. However the evidence is clear that there are adverse consequences that arise as a result of the role of caregiver in this setting.
Conclusions
In light of the mounting evidence of the significant burden placed on caregivers of persons with disease and disability, it is imperative that the opportunity be taken to ensure that evidence informs best practice and policy in order to provide the support and services necessary to make an impact.